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RESTORE Study

Are you an adult with long-term (>6 months) difficulty with speech or language skills? The George Institute for Global Health is conducting research on a new app technology for NDIS participants with communication difficulties.

  • Acquired Brain Injury, Communication Disorder, Stroke

Study Description/ Purpose

The George Institute for Global Health is conducting research on a new app technology by Kinephonics®, which is a new approach to support people with long-term difficulties with speech and/or language skills. 

Participants must be receiving or be eligible to receive NDIS funding to take part in this project.

This is a feasibility study to explore possible benefits of using support workers and allied health assistants to provide the intervention with the app in your home and/or community.

What’s Involved?

The study will involve:

  • 20–30-minute intervention sessions using a new app technology twice a week for 6 weeks (12 sessions) in your home and/or local community, led by a support worker/allied health assistant.
  • 1–2-hour assessments via Zoom with the George Institute researcher at 4 time points across the study period: week 0, 6, 12 and 16.
    A family member/carer will be present to help you at these assessments. Different communication outcomes will be measured at these sessions.
  • Optional: 2 functional MRIs before and after the intervention period (participants with a previous stroke only)
  • Optional: An interview following the intervention period to discuss your thoughts and experiences with the new app technology and study design

To enrol in the study, you will need to use $3836 of your NDIS funds to pay for the standard Kinephonics intervention cost for 12 sessions.

Disease or condition

Long-term difficulty with speech and/or language skills

Recruitment criteria

The study is open to adults aged 18-65 years living in NSW, who:

  • Are receiving or eligible for NDIS funding
  • Have a long-term (>6 months) speech or language disorder due to a:
    • Developmental disability (e.g., autism, cerebral palsy) – indicated by previous medical diagnosis OR
    • Acquired brain injury (e.g., stroke, traumatic brain injury, cancer) – indicated by treating medical team
  • Have access to a smartphone or a tablet.
  • Are not currently attending speech therapy

Benefits

The intervention is easy to access in everyday settings (such as your home, your community) on your own phone/tablet/computer, and is led by you and/or your family

Study sponsor / funder

Research team contacts

RESTORE Study Team

[email protected]

(02) 8052 4300

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