Participant Information Statement
This outlines everything you need to know about registering for ‘Join Us’. It contains details on how the register works and how your personal information and survey responses are stored and used securely to match you to research studies.
Participant Information Statement – Data Linkage
Once you have registered to participate in the Join us register, you will be invited to participate in the data linkage option. This is an optional step. Additional details in this version of the statement describe how your personal information will be securely linked to electronic health records and stored in a de-identified format. This means we can more precisely match you to research studies and enable researchers to use these records to answer research questions.