Care needs of children with chronic conditions

An online survey to understand the experiences and care needs of children with chronic health conditions

Study description/purpose

Having a child diagnosed and treated for Chronic Health Conditions can be distressing for parents everywhere. Research into outcomes for survivors has suggested that children can experience emotional, behavioural & social problems, and a range of other difficulties.

Investigating outcomes including unmet needs can assist in designing appropriate measures and intervention plans for improving psychosocial outcomes for children. This research aims to understand the experiences and unmet needs of families of children with cancer & other Chronic Health Conditions with the aim of identifying strategies to assist parents and children through and beyond treatment.

What’s involved

Participants will be asked to complete a 15-minute online survey. Measures in the survey assess three areas:

  1. Outcomes for the children,
  2. Parents needs and distress experiences and
  3. Demographic information.

It is a voluntary survey and participants can quit from the study at any point of time. If they start but quit the survey, we will remove all the information they have provided. Findings from the survey will be reported at a group level and participants will not be identified in any reports from the survey.

Disease or condition

Children with cancer or other chronic conditions including Asthma, Diabetes, Heart Disease, Heart Failure, Kidney Disease.

Recruitment criteria

  • Children between the ages of 0 – 12 with chronic health conditions (including Asthma, Cancer, Diabetes, Heart Disease, Heart Failure, Kidney disease)

Benefits

Nil

Study sponsor / funder

Research team contacts

Sangeetha Thomas

0416543065

Register your interest


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